Monday, November 26, 2012

December Meetings in Minnesota

Saturday, December 8, 2012
10:00 am to 12:00 noon
Methodist Hospital cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Group discussion.

For more information about the meetings in St. Louis Park, including parking directions, please visit the excellent new web page.

Wednesday, December 12, 2012
12:00 noon to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082

NOTE THE START TIME IS NOON FOR THIS CHRISTMAS MEETING

MAP

Christmas buffet.  Bring something yummy or just come join us - there's always plenty to eat.

For more about the Stillwater meetings, please visit the excellent new web page.

Saturday, December 15, 2012:
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

For more information about the Rochester Sharing Group, please visit this web page.

The Rochester group also maintains its own web page, here.

Saturday, October 27, 2012

November Meetings in Minnestoa

Saturday, November 10, 2012
10:00 am to 12:00 noon
Methodist Hospital cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Group discussion.

For more information about the meetings in St. Louis Park, including parking directions, please visit the excellent new web page.

Wednesday, November 14, 2012
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Speakers:
  • A representative from the Leukemia and Lymphoma Society; and
  • Amy Modean, from Millennium, to discuss their new patient program.
Next month: Christmas buffet December 12, 12:00 noon.  Bring something yummy.

For more about the Stillwater meetings, please visit the excellent new web page.

Saturday, November 17, 2012:
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

For more information about the Rochester Sharing Group, please visit this web page.

The Rochester group also maintains its own web page, here.

Thursday, September 20, 2012

October Meetings in Minnesota

Wednesday, October 10, 2012:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Group discussion.

For more about the Stillwater meetings, please visit the excellent new web page.

Saturday, October 13, 2012
8:30 am to 1:00 pm
Methodist Hospital Auditorium
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Multiple Myeloma Patient and Caregiver Seminar
  • Presented by the Leukemia & Lymphoma Society, all free.
  • Saturday, October 13, 8:30 am to 1:00 pm, includes breakfast and lunch, free
  • Keynote Speakers:  Dr. S. Vincent Rajkumar, Mayo Clinic, Eleanor Leary, MSW, LICSW, University of Minnesota, and Jill Randall, MSW, LICSW, University of Minnesota.
  • For registration and more information, see the brochure.
  • Due to limited space, please register right away.
For more information about the meetings in St. Louis Park, including parking directions, please visit the excellent new web page.

Saturday, October 20, 2012:
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

For more information about the Rochester Sharing Group, please visit this web page.

The Rochester group also maintains its own web page, here.

Monday, September 3, 2012

September Meetings in Minnesota

Wednesday, September 12, 2012:

Special Stillwater Meeting on the Boat:
   Confirmation of our St. Croix Boat Packet Co. Cruise.
   ANASTASIA (our private boat) Wednesday, Sept. 12, 2012.
   Lunch included. (12:00 noon until 2:30pm.) 
   Be there no later than 11:30am to pay and check in.
   The boat leaves the dock at 12:00, no exceptions.
   Pay individually, $19.25 each. Drinks are on your own.
   Bring spouses and friends if you want.
   Make checks out to: St. Croix Boat and Packet Co.
   Keep Barb and Karl up to date with the number of people that will be attending.
   Barb's phones:  651-210-2985 (cell) 651-486-9360 (home)

Next month's meeting will be back at the Family Means Center.

For more about the Stillwater meetings, please visit the excellent new web page.


Saturday, September 15, 2012
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

For more information about the meetings in St. Louis Park, including parking directions, please visit the excellent new web page.

Next Month (but register now):
  • Multiple Myeloma Patient and Caregiver Seminar
  • Presented by the Leukemia & Lymphoma Society, all free 
  • Saturday, October 13, 8:30 am to 1:00 pm, includes breakfast and lunch, free
  • Keynote Speakers:  Dr. S. Vincent Rajkumar, Mayo Clinic, Eleanor Leary, MSW, LICSW, University of Minnesota, and Jill Randall, MSW, LICSW, University of Minnesota.
  • For registration and more information, see the brochure.
  • Due to limited space, please register early.

Saturday, September 15, 2012:
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

For more information about the Rochester Sharing Group, please visit this web page.

The Rochester group also maintains its own web page, here.

Sunday, August 5, 2012

Frank Vondrashek died Sunday, August 5

With Eve Friedli, Frank co-founded the Myeloma Support Group in Rochester, Minnesota. Last January his myeloma numbers were OK, but he was tired and out of breath, with a low white cell count. His ten years of myeloma treatments had given him acute myeloid leukemia. After a valiant battle, he succumbed to that disease this morning.

Visitation is Thursday evening, August 9, and the funeral is Friday morning, August 10. Here is the obituary with details.

The Rochester myeloma support group will survive, but we will miss you Frank.

Wednesday, August 1, 2012

Wednesday, August 8, 2012:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

U of M researcher Dr. Mike Linden will speak on "Evaluation of serum and bone marrow for residual disease in multiple myeloma: perspectives from a hematopathologist."

Also Dr. Brian Van Ness will join us, as will our own Pat Killingsworth.

For more about the Stillwater meetings, please visit the excellent new web page.

Saturday, August 11, 2012
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Mr. Pat Killingsworth, a member who moved from Minnesota to Florida, will join us and will be the speaker.

For more information about the meetings in St. Louis Park, including parking directions, please visit the excellent new web page.

Saturday, August 18, 2012:
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

For more information about the Rochester Sharing Group, please visit this web page.

The Rochester group also maintains its own web page, here.

Chuck Hohn Died July 28

Charles Edward Hohn (Chuck) has been a regular member of the Stillwater support group, looking for answers to his very aggressive myeloma.  He had entered hospice a couple of days before his death.

Obituaries:
We will miss you Chuck.

Monday, July 9, 2012

July Meetings in Minnesota

Wednesday, July 11, 2012:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

For more about the Stillwater meetings, please visit the excellent new web page.

Saturday, July 14, 2012
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

For more information about the meetings in St. Louis Park, including parking directions, please visit the excellent new web page.

Saturday, July 21, 2012:
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

For more information about the Rochester Sharing Group, please visit this web page.

The Rochester group also maintains its own web page, here.

Saturday, July 7, 2012

Cecilia Kaluza Died Wednesday, July 4, 2012

Cecilia Kaluza was a member of the Minnesota myeloma support groups. She died after a courageous battle with MM.

Memorial Mass will be 2:00 pm Tuesday, July 10, at St. Michael's Catholic Church, 611 So. 3rd St.,Stillwater. Visitation will be 5:00 to 8:00 pm Monday, July 9, at Simonet Funeral Home, 6429 Osgood Ave N, Stillwater and also one hour prior to Mass in the church atrium.

Here is a link to one of the obituaries: http://www.superiortelegram.com/event/article/id/67903/. Others may be available with a search.

We will miss you, Cecilia.

Friday, June 29, 2012

John Hunt Died Monday

John Hunt, a 15-year member and one of the founders of the Twin Cities myeloma support group, died Monday, June 25, of sudden heart problems which were likely due to amyloid deposits from his myeloma.

John was known for his brilliance, kindness, and sense of humor.  With his knowledge of biology, he had much advice and wisdom to offer.  We were honored to call him a friend. Our thoughts are with his wonderful family who opened their lovely home to us in the group's early days.

His service will be at:

St. Frances Cabrini Church
1500 Franklin Ave. S.E., Minneapolis, MN
Saturday, July 7, at 11 a.m., with visitation for an hour prior to the service.

Obituary: Legacy.com

We miss you already John.

Saturday, June 2, 2012

Mark Fearing Died Today

Myeloma claims another one.  Mark and his wife Carol have been regulars at myeloma support group meetings in Minnesota.  Recently he ran out of treatment options, and entered hospice.  You can pass your condolences to Carol on Mark's Caring Bridge site.

We will miss him.

Friday, June 1, 2012

June Meetings in Minnesota

Saturday, June 9, 2012
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

For more information about the meetings in St. Louis Park, including parking directions, please visit the excellent new web page.


Wednesday, June 13, 2012:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

For more about the Stillwater meetings, please visit the excellent new web page.


Saturday, June 16, 2012:
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

For more information about the Rochester Sharing Group, please visit this web page.

The Rochester group also maintains its own web page, here.

Friday, May 4, 2012

May Meetings in Minnesota

Wednesday, May 9, 2012:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Our speaker in Stillwater will be Kelly Cox, Director of Support Group Outreach for the International Myeloma Foundation.

For more about the Stillwater meetings, please visit the excellent new web page.


Saturday, May 12, 2012
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Our speaker in St. Louis Park will be Kelly Cox, Director of Support Group Outreach for the International Myeloma Foundation.

For more information about the meetings in St. Louis Park, including parking directions, please visit the excellent new web page.


Saturday, May 19, 2012:
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

For more information about the Rochester Sharing Group, please visit this web page.

The Rochester group also maintains its own web page, here.

Tuesday, April 10, 2012

April Meetings in Minnesota

Wednesday, April 11, 2012:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Our speaker in Stillwater will be Robert Hall, RN, CNP. Rob specializes in treatment of myeloma at Mayo Clinic.

For more about the Stillwater meetings, please visit the excellent new web page.


Saturday, April 14, 2012
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Our speaker will be Alice Shapiro, discussing nutrition.

For more information about the St. Louis Park meetings, including parking directions, please visit the excellent new web page.


Saturday, April 21, 2012:
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

For more information about the Rochester Sharing Group, please visit this web page.

The Rochester group also maintains its own web page, here.

Friday, March 2, 2012

March 2012 Meetings in Minnesota

Saturday, March 10, 2012
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.


Wednesday, March 14, 2012:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Our speaker in Stillwater will be Dr. Christine Simonelli, a specialist in osteoporosis.


Saturday, March 17, 2012:
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Rochester Support Group Web Page

Sunday, January 22, 2012

February 2012 Meetings in Minnesota

Wednesday, February 8, 2012:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Agenda:
  • Review of ASH Conference by Don Wright
  • New MM Support Group Web Site by Gerry Landy
  • Caregiver Education by Jenny West
  • Patients update each other.

Saturday, February 18, 2012
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.

This will be a regular group meeting.


Saturday, February 18, 2012
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Rochester Support Group Web Page

Sunday, January 8, 2012

January 2012 Meetings in Minnesota

Wednesday, January 11, 2012:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Agenda:
  • A representative from Onyx will tell us about the a new myeloma treatment Carfilzomib
  • Dr. Brian Van Ness from the University of Minnesota will update us on his research into the genetics of myeloma.

Saturday, January 21, 2012
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.

This will be a regular group meeting. Pat Harwood and Don Wright will talk about the ASH conference.


Saturday, January 21, 2012
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Rochester Support Group Web Page