Saturday, November 26, 2011

December 2011 Meetings in Minnesota

Saturday, December 10, 2011
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.

This will be a regular group meeting.


Wednesday, December 14, 2011:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

This is the Christmas Buffet meeting.


Saturday, December 17, 2011
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Sunday, November 13, 2011

November Meetings in Minnesota

Wednesday, November 16, 2011:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Agenda:
  • Sharing
  • Don Wright update on lobbying
  • Marilyn Theesfeld on benefits
  • Clem Duffy on supplements

Saturday, November 19, 2011
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.

This will be a regular group meeting.


Saturday, November 19, 2011
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Dr. Kumar has been invited to speak.

Snacks, sharing, and always a representative from Mayo Clinic.

Friday, September 23, 2011

October 2011 Meetings in Minnesota

Wednesday, October 12, 2011:

Myeloma survivors and family/friends are invited to a support group meeting on a paddle boat cruise on the St Croix River. $19.25 each person.

Stillwater, MN
October 12, 2011
11:30 am to 2:00 pm. Don't be late!
MAP

For more detail, see the previous post.


Saturday, October 15, 2011
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.

This will be a regular group meeting.


Saturday, October 15, 2011
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Rochester group's Brochure
Rochester group's MMCF Web Site

Monday, September 12, 2011

Minnesota Myeloma October Boat Cruise

Myeloma survivors and family/friends are invited to a support group meeting on a paddle boat cruise on the St Croix River.

Stillwater, MN
October 12, 2011
11:30 am to 2:00 pm
MAP

Please plan to arrive at the boat by 11:15. The boat waits for no one. It will probably be the ANDIAMO, but check back the morning of Oct 12.

Cost: $19.25 per person, which includes a lunch of sliced meats and cheeses served with fresh bakery rolls, sandwich fixings, fresh fruit, seasonal salad, a warm entree selection, and a gourmet cookie selection. Make out the check to St. Croix Boat.

There will be no speaker and no formal sharing session, just one-to-one conversation. Cash bar.

Fall color should be as good as it gets.

Tuesday, August 23, 2011

September 2011 Myeloma Meetings in Minnesota

Wednesday, September 14, 2011:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Our guest will be one of our own. Pat Killingsworth, formerly from this area, will speak as a Millennium Ambassador.



SPECIAL EDUCATIONAL SEMINAR

Saturday, September 17, 2011

8:30 am through lunch
Methodist Hospital Auditorium
6500 Excelsior Blvd.
St Louis Park, MN
MAP

You and yours are invited. Speakers are:

Dr. Morie Gertz, M.D., Professor of Medicine and Chair, Mayo Clinic Dept. Internal Medicine

TOPIC: Myeloma Updates / Questions & Answers

Robert Hall, R.N., C.N.P.

TOPIC: Management of Side Effects

There is no cost to attend this seminar, but you are asked to register your intention to come. Here is the seminar brochure which includes a registration form. (pdf)

Special directions: This meeting is in Methodist Hospital in St Louis Park, as usual, but in a different (larger) auditorium. Park in the Blue Ramp at the front of the hospital, take the ramp elevator down one floor. The Auditorium is on the ground floor next to the Cardiovascular Center.



Saturday, September 17, 2011
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Rochester group's Brochure
Rochester group's MMCF Web Site

Monday, July 25, 2011

Stacy Needs Your Stem Cells


Stacy is a young Minnesota mother with myeloma. She has tried just about every treatment, including an autologous transplant, but her aggressive myeloma will not relent. She has a Caring Bridge site.

Stacy's doctors want to do an allogeneic transplant, hoping that stem cells from another person, a donor, will give her a brand new immune system which will view her myeloma cells as invaders and will destroy them. This is called the "graft versus myeloma effect" and can sometimes provide a long-term remission.

So far, though, the doctors have found no matching donor.

The web site www.marrow.org gives guidance for registering, and information about the actual process of donating stem cells.

From the web site, some of the donor requirements:
  • Age 18 to 60.
  • Good health, including NO CANCER.
We who have myeloma are not eligible, but many of our caregivers, relatives, and friends may be.

According to the web site, the registration procedure involves a swab of cheek cells, to be done at home. Once registered, a person could be "matched" to anyone with a need. If an opportunity to donate is presented, a person can accept or decline it.

Please feel free to link to this post, or copy it directly to your own blog, or make up a better one! Thank you.

August 2011 Meetings in Minnesota

Wednesday, August 17, 2011:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Our guest will be Michele O'Brien, RN, CNS, MSN, AOCNS, who is the Survivorship Navigator at Minnesota Oncology in Edina and will speak to us about Survivorship.


Saturday, August 20, 2011
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.

This will be a regular group meeting.


Saturday, August 20, 2011
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Rochester group's Brochure
Rochester group's MMCF Web Site

Wednesday, June 22, 2011

July 2011 Meetings in Minnesota

Wednesday, July 13, 2011:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Our guest will be a transplant doctor from the University of Minnesota.


Saturday, July 23, 2011
8:30 am to 3:00 pm
Sheraton Minneapolis
12201 Ridgedale Drive
Minnetonka, MN 55305

International Myeloma Foundation (IMF)
Regional Community Workshop


Workshop BrochureThe Twin Cities Myeloma Support Group invites survivors, families, caregivers, and friends to attend. There is no charge, but please register with the IMF:
  • o    Call 800/452-CURE (2873), or
  • o    email theIMF @ myeloma.org, or
  • o    Register on line HERE.
<=== Click for the full brochure

The regular July support group meeting will not be held.




Saturday, July 16, 2011
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Rochester group's Brochure
Rochester group's MMCF Web Site

Sunday, May 22, 2011

June 2011 Meetings in Minnesota

Wednesday, June 8, 2011:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Our guests will be from The Binding Site, makers of the Freelite blood protein laboratory tests which have revolutionized the diagnosis and monitoring of myeloma for some patients.


Saturday, June 18, 2011
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.


Saturday, June 18, 2011
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Rochester group's Brochure
Rochester group's MMCF Web Site

Myeloma Support Group Meeting, Rochester Minnesota

A member of Minnesota's Twin Cities support groups recently attended a meeting of the Rochester support group, and blogged about it HERE.

Monday, April 25, 2011

May 2011 Meetings in Minnesota

Wednesday, May 11, 2011:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

A Celgene patient support advocate will be present. Celgene is the manufacturer of Thalomid, Revlimid, and pomalidomide.


Saturday, May 21, 2011
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Lindy Yokanovich from the Cancer Legal Line will discuss Health Care Directives and answer any legal questions.

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.


Saturday, May 21, 2011
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Rochester group's Brochure
Rochester group's MMCF Web Site

Thursday, March 24, 2011

April 2011 Myeloma Meetings in Minnesota

Wednesday, April 13, 2011:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Ardy's chiropractor will discuss laser treatments for neuropathy.


Saturday, April 16, 2011
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Heather Spencer, an Oncology Specialist from Millennium, will be able to answer any questions regarding Velcade, funding for co-pays, and new new programs at Millennium.

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.


Saturday, April 16, 2011
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic. This month the group will be joined by Dr Shaji Kumar.

Rochester group's Brochure
Rochester group's MMCF Web Site

Friday, March 4, 2011

March 2011 Meetings in Minnesota

Wednesday, March 9, 2011:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP


Saturday, March 19, 2011
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.


Saturday, March 19, 2011
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Rochester group's Brochure
Rochester group's MMCF Web Site

Wednesday, February 2, 2011

February 2011 Meetings in Minnesota

Wednesday, February 9, 2011:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Patient advocate Karl Vollstedt will tell his myeloma story.


Saturday, February 19, 2011
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.


Saturday, February 19, 2011
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Rochester group's Brochure
Rochester group's MMCF Web Site

Tuesday, January 4, 2011

January 2011 Myeloma Meetings in Minnesota

Wednesday, January 12, 2011:
1:00 pm to 3:00 pm
Family Means Center
1875 Northwestern Ave S
Stillwater, MN 55082
MAP

Our speaker will be Kathi Martin, Transplant Coordinator, Abbott Northwestern Hospital. And, as always, we will share our experiences and wisdom with each other.


Saturday, January 15, 2011
10:00 am to 12:00 noon
Methodist Hospital Cancer Center Conference Room
6500 Excelsior Blvd.
St Louis Park, MN
MAP

Park in the Orange Ramp at the BACK (northeast side) of the hospital, take ramp elevator to 1st floor, follow the hallway, the conference room is on the right before the big curved stairway.


Saturday, January 15, 2011
10:00 am to 12:00 noon
Gift of Life Transplant House
705 Second St SW
Rochester, MN 55902
507/288-7470
MAP

Snacks, sharing, and always a representative from Mayo Clinic.

Rochester group's Brochure
Rochester group's MMCF Web Site